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Lucy’s Story

Lucy, 37

Lucy - patient stories

“I was diagnosed with stage 3 bowel cancer at the age of 35 in September 2015.

 

“Before my diagnosis, I was leading a normal life – going to work and looking after my step-children. I had no inkling of what was to come as I didn’t have symptoms that could be attributed to bowel cancer.

 

“My cancer was diagnosed purely by chance.

 

I was due to have a hysterectomy after experiencing gynaecological problems for a decade. I also had lupus, so my medical team wanted to carry out a final CT scan just before the hysterectomy to check on the location of stents which I had in place. An eagle-eyed radiologist spotted a very small spot on the scan and called over a passing bowel specialist to take a look.

 

“I was given a sigmoidoscopy – a procedure which allows the doctor to see inside the rectum and up into the lower part of the bowel – and was told almost immediately that I had bowel cancer.  I had a bowel resection to remove the cancer in November 2015 (and a hysterectomy at the same time) and in February 2016 started a course of chemotherapy.

 

“It is now almost a year since I finished my chemotherapy and I have three-monthly check ups, yearly colonoscopies and am due a CT scan in July [2017].

 

“My diagnosis came as a complete shock to me and my family. My dad had just been given the all-clear from prostate cancer and it was hard for my parents to take this news in. It was also very hard for my sister – particularly as she lives in Australia.

“I had fantastic support from my medical team including the colorectal nurses who looked after me during my long recovery. The team had a very relaxed attitude to my treatment which encouraged me to think as if I was being treated for something minor like a cold.

 

“I found joining online forums – including Beating Bowel Cancer’s forum for young people with bowel cancer – really helped me. I also followed Beating Bowel Cancer on twitter and the charity’s nurse helpline was one of my first ports of call.

Lucy - patient stories

“My age at diagnosis wasn’t the biggest thing for me. It was the fact that I had no symptoms and yet I had stage 3 bowel cancer. But I’ve come out the other end thanks to a great medical team and a positive mental attitude.

 

“I only had about three days during my entire treatment of thinking of ‘why me?’ I chose to have a very pragmatic attitude and to believe that I just had to get through the treatment and all would be well.

 

“Sometimes my husband and I look back and find it hard to believe what we have been through.

 

“My scars are there as proof of what happened but I also see them as war wounds which remind me that I came out the other end. I now look at life differently. For example, I’m much more aware of the fact that there are people around me who may look ok but who may have hidden disabilities and problems.”

 

“Looking back, I wonder if some of the gynaecological symptoms I experienced may have been early signs of bowel cancer.

 

“I was tested for gynaecological issues for 10 years but doctors could never find anything. However, I knew something wasn’t right – you know your body and you know when something is wrong. I didn’t have typical signs of bowel cancer – no blood for example, and because of my age it didn’t cross my mind.

 

“I want people to know that bowel cancer is not something that only affects older people. You know your body. If something isn’t right keep going back to your doctor.

 

“It’s always in the back of my mind. I do worry about every niggle and my GP says he expects to see me more often than before. But I think I’m in a better place now – my doctors are always checking on me.”

For more information and support about this or any other bowel cancer issues, please visit our forum