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Author Topic: colorectal cancer operation timescale  (Read 8808 times)
Hazel
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« Reply #30 on: April 02, 2012, 09:52:13 PM »

I will add you too Mike......my best friend from School lives in Wirksworth!!
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Below is a bit about me and bowel cancer
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wikey
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« Reply #31 on: April 02, 2012, 11:06:37 PM »

well what a coincidence !!
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Hazel
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« Reply #32 on: April 03, 2012, 12:13:46 AM »

Seems so ......mind you i don't know how big wirksworth is! Smiley
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Call the nurses on 08450 719 301
You never know how strong you are until being strong is the only choice you have!
Blogging at http://elkamouri.blogspot.co.uk/
Below is a bit about me and bowel cancer
http://www.beatingbowelcancer.org/forum/index.php/topic,1677.0.html
wikey
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« Reply #33 on: April 03, 2012, 08:52:42 AM »

it a small country town, a few thousand people, in rural derbyshire, just on edge of peak district.
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Hazel
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« Reply #34 on: April 03, 2012, 12:03:53 PM »

I visited once a few years ago and completely fell in love with the peak district, so beautiful, sometime in the summer i intend to go up there and visit again, you are very luky to live in such a lovelly place!
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Call the nurses on 08450 719 301
You never know how strong you are until being strong is the only choice you have!
Blogging at http://elkamouri.blogspot.co.uk/
Below is a bit about me and bowel cancer
http://www.beatingbowelcancer.org/forum/index.php/topic,1677.0.html
alisonhelen
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« Reply #35 on: April 03, 2012, 08:52:31 PM »

We stayed in Cromford once on a farm, when the children were young, had an amazing holiday, going to Matlock, the Blue John mines and a bus and tram museum in Crick! Gosh that was ages ago think my daughter was about 4, so that's 23 years ago! Seems like only yesterday...........
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Come with me on a journey, no map, destination unknown and I'll travel your path with you. We'll hold each other up when the road gets steep, we'll laugh and cry along the way, because I feel your pain and you feel mine.
Feel free to read my blog:-'Why not me?' http://alisonhelen.blogspot.co.uk/
wikey
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« Reply #36 on: April 04, 2012, 01:36:45 PM »

i am back in Bolehill now, there is a  big hole in road down Cromford hill, diversion is through Middleton and down past cottage where DH Lawrence once lived and onto Via Gellia and back to Cromford, except this morning a bunch of cars were jamming the hill after Middleton so went all the way to Belper to get A6 and onto Matlock to drop Sue off for work !!

so yes a very nice area but it has its complications!!
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wikey
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« Reply #37 on: April 17, 2012, 03:37:18 PM »

Hello folks

 
Saw the surgeon this morning
  He said that I had an excellent response to the radiotherapy, in fact the radiologist was having trouble  seeing the tumour, and that it has pretty much disappeared. Also the lymph nodes that were swollen have shrunk right down and are not showing up.
So  all good as far as that stage has gone.
So I shall have a date  for an operation in the next few days and the operation is likely to be in around a month. This will  include a temporary ( hopefully) stoma.
Then some checks about 4 weeks after that  to see what the biopsy of the removed tissues reveals. Then a decision as to whether any further chemotherapy is required. If it is,   I will be on a 30 week course of chemo.
If no chemo is required then the stoma will be reversed (hopefully) about 12 weeks after the first operation.
I am likely to be in hospital for the first op for less than a week and  not able to do too much activity for the first 8 weeks after the op.
Will let you know more when I actually have a date for the op.
Love and best wishes
Mikey

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Hazel
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« Reply #38 on: April 17, 2012, 04:17:26 PM »

Thanks for updating us Mikey it is great that you had such a positive outcome from the radiotherapy! Keep us updated and here's hoping that the op goes well, no stoma or chemo required!
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Call the nurses on 08450 719 301
You never know how strong you are until being strong is the only choice you have!
Blogging at http://elkamouri.blogspot.co.uk/
Below is a bit about me and bowel cancer
http://www.beatingbowelcancer.org/forum/index.php/topic,1677.0.html
wikey
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« Reply #39 on: April 21, 2012, 10:23:32 AM »

hi again, well i will definitely have a stoma but hopefully it will be temporary !!

all the best to everyone on here....

mikey
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wikey
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« Reply #40 on: April 21, 2012, 10:26:41 AM »

Hello Mikey,
It is also worth mentioning that there are now some surgeons who have been trained in a technique where they can use endoscopy and very specialist surgery to remove very low rectal tumours without the need to resort to a permanent stoma formation, using something called the APPEAR technique. While not everyone is suitable for this kind of surgery, it may well be worth exploring the possibility while you are recovering from your radiotherapy and waiting to see how much the tumour shrinks down.

There is more information about it here, which may be helpful
http://www.bowelcancerresearch.org/changing_lives/article.php?article=7


With best wishes, Lilian

hello Lilian, is this technique in use in the uk or is it still under development?
cheers
mikey


>>moderated to make the quote and comment seperate. suze may 2012<<
« Last Edit: May 17, 2012, 08:45:30 AM by suze » Logged

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alisonhelen
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« Reply #41 on: April 21, 2012, 11:49:36 AM »

Hi Mikey,

So glad you've had such an excellent response to your radiotherapy. Thanks for posting about it as it is so encouraging for those about to embark on such a daunting journey!

Have you asked your surgeon about the APPEAR tecnique? When you next see him, why not show him the article from cancer research that Lilian gave you the link for? Good luck anyway with your op, I hope too that you don't end up with a permanant stoma, but they are NOT the end of the world! Fingers crossed for no chemo too!

Best wishes, Alison
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Come with me on a journey, no map, destination unknown and I'll travel your path with you. We'll hold each other up when the road gets steep, we'll laugh and cry along the way, because I feel your pain and you feel mine.
Feel free to read my blog:-'Why not me?' http://alisonhelen.blogspot.co.uk/
wikey
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« Reply #42 on: April 21, 2012, 11:56:31 AM »

well i did mention the appear technique to him,  he had not heard of it, i mentioned professor williams, he said what norman williams, president of the  college of surgeons, and i said yes i think so , and he made a comment that was a little odd, so i wont mention any more names or  specifics, but i might show him the article next time.

but he aid that  because mine was on the zygmoid junction it should be reversible,  so he did not seem concerned about the reversal but obviously was cautious in what he said as we all know things can always be more difficult than hoped .

i have read up on the appear technique but i see that the person mentioned was in the early program for it but  couldn't really find out if it was becoming mainstream yet

cheers
mikey
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alisonhelen
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« Reply #43 on: April 21, 2012, 12:12:50 PM »

Mikey,

I notice from the article that there are 4 hospitals in the UK collaberating in the trial. Why not contact the one nearest to you to find out about it? They may be looking for trialists or may suggest a surgeon with experience nearer you. Worth thinking about anyway!

Alison
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Come with me on a journey, no map, destination unknown and I'll travel your path with you. We'll hold each other up when the road gets steep, we'll laugh and cry along the way, because I feel your pain and you feel mine.
Feel free to read my blog:-'Why not me?' http://alisonhelen.blogspot.co.uk/
wikey
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« Reply #44 on: May 16, 2012, 04:53:23 PM »

Waiting for a call back from macmillan to discuss if I can get dla
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