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Author Topic: Liver resection complications-right place?  (Read 2942 times)
CakeyClaire
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« on: September 16, 2012, 11:19:03 PM »

Hey all, hope this is the right place to post about secondary liver cancer as there seems to be nowhere to post for advanced bowel c.

my story: Dad was diagnosed with advanced bowel (Dec 2010) with spread to both lobes of liver. He recently underwent a resection to take away the nasties in his liver. Came home and was well for a few days then he 'went weird'-he felt very tired, was sweating profusely, but felt very cold, temp above 38 degrees, wasn't tiddling-very unlike him. I called an ambulance, got him sent to our local hospital, who tried their best (not) so got him transferred back to the hospital where he had his liver resection.
Turns out he had bile leaking from his liver where the liver was regrowing. but not fully connecting up yet. The bile and fluid were sitting on his lungs almost collapsing one, so he had many drains put in, and this sorted the problem out. He also had a servere chest infection which didn't help. He is on his way to recovery as I speak, getting better every day, but has to see a lung specialist to see why his lungs still sometimes have a bit of fluid on them.

Im just posting this so that patient/carers facing a resection are aware of the symptoms of this type of complication, so they can act promptly and don't hesitate. Remember, after a huge op, a temp above 38 needs emergency attention.

Thanks for reading, and bid everyone good luck Smiley

Claire
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« Reply #1 on: September 17, 2012, 12:52:31 AM »

Hi claire,
Thanks for the warning. Glad your Dad is getting better after his ordeal.  You're right to point oujt the possible complications of liver surgery, this is indeed major surgery and any problems must be taken seriously and acted upon. Best wishes to your dad for a speedy recovery. I hope the operation was successful
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Hazel
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« Reply #2 on: September 17, 2012, 01:20:24 AM »

Hi Claire and welcome to the forum thanks for posting regarding your experience it's always good to be informed about procedures. I hope that you find the forum a support and help too for you and your dad. Ther eis great advice to be found from the nurses here and insight into how it feels to live with bowel cancer from other members of the forum. We also have members who like you are caring for a relative. Good luck to your dad and please let us know how he gets on!
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wikey
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« Reply #3 on: September 17, 2012, 08:59:53 AM »

Hello Claire and welcome
you dont  say how old your dad is or yourself but I am sure you are a great comfort to your father
Well done
And a very useful post
Best wishes to you both
Mikey
« Last Edit: April 27, 2013, 11:00:49 AM by wikey » Logged

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alisonhelen
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« Reply #4 on: September 17, 2012, 09:39:20 AM »

Hi Claire, welcome to our forum and thank you for posting about your Dads complications after liver resection. I may have to have this done as there is a queury about a lesion on my liver, am having another MRI soon to confirm what it is, but my liver surgeon, says if it is another tumour that is what I'll have to have done! Forewarned about complications is forearmed!

Best wishes, Alison
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suze
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« Reply #5 on: September 17, 2012, 12:07:56 PM »

hiya
ref your question about  where to post?

We do have two sections which are are mainly used by ppl with advanced disease .. "living with cancer" and "when cancer returns"

Although this here is  a perfectly fine place for your question too, and you could equally have put it in the "treatment" section .. we have a fluid filing system and I only make the point in case you are wondering where to browse in here for other patients with the advanced disease.
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CakeyClaire
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« Reply #6 on: September 17, 2012, 11:10:04 PM »

Thanks everyone for the welcome Smiley I have posted on here before, but should post more often!

Hi Mikey, my Dad was 51 when he was diagnosed, after being relatively asymptomatic. The only warning signs were the occasional loose poop, and blood/mucus from the bum which made him go to docs. Diagnosed advanced. Me, I'm 25, live with parents. Mum works full time.

Hi Alison, I hope the lesion turns out to be scar tissue or something other than a met. I think because they took out a large amount of my Dads liver thats why complications set in, but the smaller the op, the less risk of complications Smiley Good luck with the MRI scan! xxx

Hi Suze, thanks for the help on where to post. I will be browsing through the forums and taking a peep when I get a bit more time.

Thanks all,
Claire x
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wikey
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« Reply #7 on: September 18, 2012, 12:29:21 AM »

Hi Claire
I think your doing a brilliant job for your dad and family
Best wishes
Mikey
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elliecoptor
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« Reply #8 on: February 19, 2013, 04:38:49 PM »

Hi,

I just have a couple of questions about your Dad's leak if you don't mind?  My Mum has a similar story to your Dad's.  Dec 2010 diagnosed with stage 4 bowel cancer and she was told she had a year, they gave her chemo for her pain but luckily this reduced the tumours in her bowl and liver siginifcantly so she had the tumours removed from her bowel and her liver.  Then in 2012 it came back in her liver and her lung and she had these removed last year.  She is currently in hospital now as it came back in her liver again in Dec 2012.

So she has recently had her third liver resection and they were only going to take out a small amount.  Because they had a lot of trouble going through the scar tissue they realised that they wouldn't be able to operate on her liver again so they took out two thirds.  During the procedure they cut her main vein and now it turns out they have also cut her bile duct.  She then had an ERCP to fit a stent to redirect the bile flow but the bile is still pouring out of her drain.  Did your Dad's leak just clear up or did they have to do anything else?  The surgeon has mentioned another operation but they can't do it as Mum's blood isn't clotting yet and they keep saying it will just clear itself up.  It has been 2 weeks now!

Thanks for your time.  Ellie
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Hazel
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« Reply #9 on: February 20, 2013, 01:18:30 AM »

Hi Ellie and welcome to the forum, Claire's post was a while ago so may not be around to respond now. However you can call the beating bowel cancer nurses on the number above to discuss your mums situation, they are a mine of information and may have some answers to your questions, or be able to point you in the right direction for finding out more from the team supporting your mum. The forum is here to support people like yourself who have a family member diagnosed with bowel cancer and for those of us who have it. I hope that you do find it useful and supportive please let us know how your mum gets on!
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Call the nurses on 08450 719 301
You never know how strong you are until being strong is the only choice you have!
Blogging at http://elkamouri.blogspot.co.uk/
Below is a bit about me and bowel cancer
http://www.beatingbowelcancer.org/forum/index.php/topic,1677.0.html
elliecoptor
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« Reply #10 on: March 25, 2013, 01:53:02 PM »

Thank you for your reply Hazel.  Mum is back in hospital with furtehr complications and it looks liek she has to have another op to clear up the bile leak.  I'm just waiting for some more information but will call the beating bowel cancer nurses if I have any questions.

Thanks again for your time.

Ellie   Smiley
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Hazel
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« Reply #11 on: March 25, 2013, 09:30:42 PM »

You are welcome Ellie please don't hesitate to call the nurses about anything they are so helpful and talking about your mums situation one to one with them will hopefully help you to understand what your mums treatment is.
We are all here to support you too!!! So please use the site for that too.
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Call the nurses on 08450 719 301
You never know how strong you are until being strong is the only choice you have!
Blogging at http://elkamouri.blogspot.co.uk/
Below is a bit about me and bowel cancer
http://www.beatingbowelcancer.org/forum/index.php/topic,1677.0.html
CakeyClaire
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« Reply #12 on: April 06, 2013, 02:10:00 AM »

Hi Ellie,

Im so sorry I haven't replied earlier to your questions-I didn't think anyone would ask q's directly on this post.

Dad's bile leak was mainly due to small amounts of bile leaking out of the very tiny bile ducts as his liver was gradually regrowing. As far as I know, they didn't cut the main bile duct, so its slightly different from your Mum x With the help of a lot of chest drains and IV antibiotics, Dads leaks did naturally clear up, but it took over 4 weeks, and even then he came home still a bit poorly. He has recovered well, but still gets breathless occasionally. I do remember the Dr saying that egg white is apparently good to eat after a resection, although I never cottoned on as to why!

I'm sorry to hear your Mum is having such a tough time recovering, although I do hope she improves soon xxx Never give up hope, and fingers crossed that time is all it needs. If you have anymore q's, don't hesitate to post on the forum, many people can help, and also the nurses too, as Hazel says (thanks Hazel),

best wishes,
Claire  Wink
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